Time to Hold Alzheimer’s Association Accountable

The U.S. Alzheimer’s Association provides critically important support services, education, programs, and referral services to countless individuals living with dementia, their families, and care prof...

In Their Own Words: Family Members of Older Adults Who Died After Being Injured During Resident-to-Resident Incidents in Long-Term Care Homes

The phenomenon of harmful resident-to-resident incidents in long-term care homes is largely invisible. While over 40 studies examined it to date, the voice of family members of residents who died afte...

Feeding the Wolf

Our influence on how mature women are perceived.

What I’ve Learned About Grandma’s Memory

The story is told from the perspective of a 10-years-old African American girl about her grandmother who lives in advanced stages of Alzheimer’s disease in a nursing home. The granddaughter is told th...

Elder Mistreatment Investigations Buried No More: 50 Reasons Why Elder Care IQ is Needed

For decades, it has been very difficult to gain access to completed mistreatment investigation reports in Minnesota long-term care homes. Elder Care IQ was developed to bridge this major gap. The arti...

The Possibilities of Creating with Dementia

Often when we tell people we lead short-term groups for people living with dementia, care providers, and friends and family, we get comments such, “Oh, that must be so difficult and painful!” We’re no...

An Agency in Need of Transparency: New York Health Department Must Release Mistreatment Investigation Reports in Adult Care Facilities / Assisted Living 

“By not asking for the data to which we are entitled, we sacrifice our ability to learn what our government is doing. Real transparency is more than waiting for the government to hand out data to us. ...

Everybody Knows

A poem about the Alzheimer’s drug Aduhelm and Medicare’s upcoming (April 11 2022) final coverage decision

The Shadow Side of Service and Activism

Like age, service is structured in consciousness. That is, the quality of our service depends on our connection to pure awareness and to shadow awareness. Our stage of awareness determines how and why...

Trust at Stake: Alzheimer’s Association’s role in FDA’s approval of Aduhelm

* A reflection on STAT article: Joseph, A. (June 16, 2021). Q&A: The CEO of the Alzheimer’s Association on the approval of Aduhelm – and why critics should stop dwelling on the decision. Link: htt...